Calm

Macayla had a more alert afternoon yesterday with a few smiles. She began having a bad breathing pattern as the day went on. It was not as spastic, but was definitely a Cheyne-Stokes breathing pattern (a few breaths followed by a period of apnea). She began to moan and sigh with it some. Ativan did not seem to break up the pattern. Later we gave some morphine and she stopped. She has been asleep for about 16 hours with a good, normal breathing pattern. We will administer Ativan around the clock and the morphine as her breathing patterns dictate.

We know she could go up and down for quite a while. We also are aware she may go home at any moment. Our prayer is to be with her and keep her as comfortable as possible. Our prayer is she will know we are near and that Christ is ever present. We hope to celebrate her birthday Saturday and in honor of her we will eat Zaxby's or Papa John's or one of her other favorite foods. I will try to keep the blog up to date, but can't make promises. Nor can I promise it will always make sense as my vocabulary, grammar and spelling reflect the sluggish condition of my mind right now. Thanks to all for the prayers and support. Our family is so blessed by you all.