Scoped Out

Macayla went in yesterday for a endoscopy of her upper GI. We had been holding off on this because it is a procedure that requires general anesthesia and that always carries risk. But after trying medications and diet changes Macayla is still having blood in her stomach and she was not tolerating her feeds again this weekend. So, an opening came up in the OR and the surgeon worked her in yesterday. Her esophagus and stomach lining looked great. As suspected, the problem has been around the feeding tube. There was a significant amount of granulation around the tube site inside the stomach. They replaced the tube and removed all excess tissue and the surgeon feels like this should correct the problem. Macayla came through great and without vomiting in recovery or the ride home. She is recovering today and is definitely sore and tired. She tenses up anytime we give her medicine and was feeling it when I hooked up her feeding pump this morning. She only got 270 ml of formula in yesterday and that is compared to the 800 she should get, so she is low on energy. But so far so good this morning. I guess there is always the chance that new granulation will come back and if it does, we will be asking if there is anything else we can do. That may or may not include putting the feeding tube in a new location. Bottom line is that Macayla just seems predisposed to this problem. We told Jacob that Macayla had to go to the hospital to have pictures taken of the inside of her stomach. He said he wanted to see the pictures when they did it. We told him that we couldn’t go into the OR with Macayla while it was being done but he was insistent on seeing pictures so I told him we would ask for copies. I warned him that the pictures may be yucky and he said, “I know but I still want to see them.” He is definitely his mama’s son. The doctor sent Jacob some pictures home and we got to see the granulation tissue and the before and after shots of the site and its repair. He didn’t throw up or anything.