Macayla and Jacob have started school. Macayla is in a multiple disabilities class at a different school from last year with other children that have a wide range of abilities. She has some great teachers and there is a nurse in the room to help with medications and feedings. We wish we could talk this nurse in coming to work for us in our home, but it wouldn’t be fair to the other kids in the class! Macayla has lit up for them some and they’ve already seen her laugh. She apparently likes music class which is no surprise. Jacob is at the same school as last year but just in another class. He has stayed with a couple of his friends from before and has some new ones. His teachers are the teachers he first had when we evacuated from New Orleans so it was good he got to have some familiar faces. They have always been a good match for him.
Macayla’s stomach contents have been clear for the last two weeks except for one day. That means that we probably identified the source of blood as her feeding tube track. Unfortunately, her tube is getting more granulation around it in spite of multiple cleanings each day and the application of the cream used around it. She is just predisposed to it I guess. It is great to know that we have identified the source and that we can treat it albeit a less than desirable situation for her. We may have to use silver nitrate on the tube site as much as every other day. Silver nitrate essentially burns the granulation away and it is not fun for her or us. We can numb the site, but I can’t imagine it is all that comfortable.
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