6 Weeks

Macayla made it 6 weeks without seizures, but they returned on Friday last week. We had reduced her Clonapin to see if she could be more alert and interactive. She became alert, but she had a seizure in the van Friday afternoon. We went back up on her Clonapin and she has had no seizures since Saturday morning. The interesting part was that Macayla started having some rigid tremors in her arms for three days in a row and it was on the third day she started the seizure activity. Her arms had not had those movements for six weeks. It makes us wonder what is happening in her noggin when all this starts. In spite of going back up on her clonapin, she has stayed fairly alert. She has been laughing a lot at her brother. She has been playing a game where she throws her head forward and it falls over to the side of her wheelchair. She thinks it is funny even though it sounds and looks like it would hurt. We tell her to put her head back and she laughs at us. It has become a game and we have had to pad the side of her chair. She is growing like crazy and is 66+ lbs. She seems to be having trouble with her skin. She has rubbed one of her knees and one of her elbows raw in the bed. Unfortunately, they are not healing as quickly as she used to. Hopefully, we can control that more soon. We are so blessed by her and thank God for her each day.