Some Bladder Function

For the last two days, Macayla has had some bladder function. It appears she needs help the most in the morning, but she has been able to go on her own during the day. For months now, she has almost always woken up with a dry diaper. It seems her bladder did not want to work until she was awake. So, this is not a new trend. We have tried to schedule her emptying to keep it close to what it was, but when she goes on her own, it throws off that schedule. 

The secretions in her mouth and throat are more than ever. We find ourselves having to recharge her portable suction machine almost every two days because we use it so much. Before December, we were maybe charging it every other week. Throughout the course of this disease, Macayla will change and lose an ability only to gain it back later and lose it again. So, we wouldn't be surprise if she gets catheter free for a while and then change back again. But changes like this make us as parents reevaluate our plans and what interventions we will do or not do as systems like the bladder shut down. We have to weigh out her comfort and risk-benefits of each step.