Plateau

Macayla has definitely been on a plateau. We notice the progression of Battens has been full of them. She will digress and lose abilities or gain symptoms then she will flatten out and not change much for some time. The longest plateaus seem to occur in the spring and then changes begin in the summer. Last summer she started grand mal seizures. They became more and more frequent and tapered off in late fall. Then she lost bladder function at Christmas and continued to have grand mals. Then in late February or early March, her bladder function became more consistent and she only requires an occasional catheter. 

It is nice to have consistency and we cherish it. She is usually comfortable during the plateaus and routines are easier to maintain. But this plateau, like the others before it, will come to an end. We do not know when the next round of changes will come, but they will. In the meantime, we cherish her smile. She has been very interactive and that helps us assess how she's feeling. My prayer is that we will become more and more prepared and equipped to help her along the way. I want to say thank you to so many who have been praying. We could not get through this without your love and support.