Macayla has not given us a reliable pattern or behavior. Her vomiting has not been as predictable as we would prefer. The times when she is most interactive are unpredictable. Her throat is weakened and causes gagging quite a bit. It is sad to watch and often we feel helpless to do much for her. We take some comfort in the fact one of her new medicines, Lorazepam, seems to help keep her comfortable. We just wish we could do more for her.
This weekend, we had friends and family come to visit. Friends from our church in Greenville and here in Anderson. My family from Aiken came to visit. Lately, my grief has been palpable and at times overwhelming because of all the changes in Macayla. This weekend has been a blur but comforting. Having friends and family here to just hang out, eat with, and love on was one of the biggest comforts there is. We spoke about things, though I can't remember exactly about what. We joked. We hugged. Did I mention we ate? We enjoyed watching the kids play and the dogs run themselves into exhaustion. Everyone got to see Macayla and love on her. It is amazing how stupefying grief can be. I really feel like I was only half awake in my interactions with everyone. But I woke up comforted this morning. The exhaustion is still here in spite of sleeping 13 hours last night! But God's comfort has been passed on through His people. Thanks be to Him and all who He worked through this weekend.
Even though we are far away - I hope that you can feel our love and "hugs" - all the way from Missouri. You are never far from our thoughts and prayers.
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