Macayla has had some interesting changes over the past two weeks. She has had significantly less seizures that we could outwardly notice. We aren't sure why. It could be caused by better absorption of seizure meds through her feeding tube than what she got by mouth. It could be from the fact that we reached our full dose of the experimental drug she has been on for Battens. Or it could simply be how her brain is being affected at this moment in the disease. Whatever it is, we like it. We know that it could go back to the way it was or worse, but we'll take what we can get.
Macayla tried out school for the first time today. She actually paid attention for 20 minutes during circle time! That's an amazing event since during these past two weeks Macayla's attention span has been about two minutes. My hat goes off to her teachers because they keep the atmosphere so energetic and interactive that it's hard not to pay attention. It will take time for them to get used to Macayla and for Macayla to get used to the schedule, but it seems to be off to a great start. Macayla even made a new friend in the class, a little boy, who really anticipated Macayla's needs and wants. He even got her to toss a ball back to him which is difficult to get Macayla to do usually. I'm so excited for her as she gets to go back to school for the first time in a while. We will go as long as she is able and it is beneficial. We thank her teachers for all that they do.
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