We took Macayla to the surgeon’s office this morning and they pulled (yanked) her tube out and looked at the channel in her stomach. This means that they looked at the actual hole in the flesh where the tube is inserted and it was full of granulation. For those of you without feeding tubes, this is tissue that forms around the tube that can be quite bloody, goopy and nasty (those are highly technical medical terms!) It’s something that can be controlled by cleaning and using a special cream around the sight, but Macayla’s was down in the actual hole so it was hard to control. The good news is that the surgeon was able to “burn” it off with silver nitrate and hopefully, it will seal up and begin to heal over the next couple of days. He said he was quite sure that this was the source of the blood in her stomach and that it should clear up very soon. If it isn’t clear in two weeks, then we will schedule a scope.
Another bit of good news is that we were fortunate enough to get a safety bed for Macayla’s room. This is like a huge crib with high side rails and padding. It will keep her from falling out of the bed and it has an articulating mattress so we can position her better for reflux problems. This will also be helpful later with pressure sores when she is vegetative. We are so blessed the way things have been provided. How fortunate we truly are to have so many caring folks who take care of Macayla and the “things” that help make her life more comfortable and functional!
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