Something About Sundays

There is something about Sundays and grand mal seizures. Macayla has gone three weeks since her last seizures (which started on a Sunday afternoon). Two weeks prior to that, Macayla had grand mals on a Sunday afternoon. Yesterday (Sunday afternoon) she had three more grand mals. This was right as I was telling my sister in California that Macayla had gone three weeks without any seizures. The longest one lasted over four minutes. She threw up, but she breathed through them. The interesting part is that her apnea monitor never alarmed. It registered that she had a normal heart and breathing rate. I was hoping the monitor would be a good way to alert us to a seizure. We may need to use a pulse/ox monitor to alarm when her oxygen level drops. She breathed, but the breathing was very shallow and she turned blue/gray during the seizures. Her oxygen level had to be down. We will have an EEG this week, but it is most likely that it will come back clear. Hopefully, we can at least pick up on spikes or something that might give the doctor some sort of hint as to where the seizures may be starting. Maybe then we can adjust to a medicine that can target the seizures a little more. But this may be part of the disease at this point. There may be nothing we can do about it and we may just have to live with the fact that she will have grand mals from time to time regardless of medication.