It Figures!

After a few weeks of difficulty sleeping because of seizure-like jerking at night, Macayla has slept too well at the hospital. Her 24 hour EEG was intended to capture these spells at night, but she barely twitched a muscle. So, they decided to keep her another night to see if we could catch it. Finally, she did her thing during her nap just before discharge. We aren't sure if what she did was seizure activity or not and we won't know for a week or so, but we hope they got enough of something to determine it one way or another. She still has the seizures we are used to seeing, but just not as many outwardly. So now we wait.
She has vomited every weekend since our G-tube was placed. She threw up at home Sunday night, and then again at the hospital during the EEG. We are not sure if this pattern is due to reflux brought on by the tube or a side effect of the medication or just a change in her brain or digestion. It is mysterious. We are investigating this next week with a nutritionist and pediatrician.