She Must Be Hungry

Sorry it has been awhile since our last update. We have had a lot on our plate lately. Macayla is doing well for the most part. She has difficulty tolerating her feedings later in the day but we still get her calories on board. Although, I am beginning to think she wants more from her feeding experience. Lately, she cannot stop putting her left hand up to her mouth and rubbing her knuckles across her teeth. Unfortunately, it has cut her knuckle open and she keeps it open. We have to restrain her left hand to keep it out of her mouth. She doesn't seem to have much interest in the right hand. Maybe it doesn't taste as good. Anyway, we seem to get close to having her knuckle healed up and she sneaks it in while we are bathing her or changing her. We have walked in at times and found that she has worked free from the restraint and there is blood all over her face and hand. Not fun. Maybe she just wants a little more red meat in her diet these days!

Overall, she is doing well. She still laughs at appropriate moments, like when Jacob gets in trouble. She has been more rigid lately but seems to relax after a warm bath and massage. She can still see colors and light and even looks right at you if your within 15 inches of her face. Some days she will lock in on the television several feet away. We are indeed blessed by how well she is doing. Her breathing and major systems are strong and steady and she has maintained good weight. But I can't blame her for wanting a little more flavor with her food.