Eyesight Surpassing Expectations

Macayla went for a check-up with the eye doctor. She is showing some deterioration in the optic nerve which is new for the doctor to report. Prior check-ups have merely shown slight changes and the optic never has always looked good. However, the doctor did state that he is impressed with the fact that Macayla's sight is doing as well as it is. She responds to light and can look at us at times when we talk to her. She seems to have difficulty focusing on objects, but I would guess she sees shapes and colors in good light. She definitely is drawn toward light sources. Overall, Macayla's function has surpassed most expectations. She is tall and has good weight. She smiles and laughs at things appropriately from time to time letting us know that she still has moments of cognitive processing of her surroundings. She is holding steady with her stomach and tube right now as well. Minimal bleeding and granulation and she tolerates all of her calories for now. I also have to say that she is a gorgeous little girl (which surpasses most expectations one should have for a child with my genetics)!