Guessing Game

Macayla has been good most of the week. She had what I would call some "neurological activity" one morning, but not sure what it was. She was very agitated when I went into her room at 6 a.m. and she had been squirming a lot during the night. She fell asleep around 7 and stayed out until mid-day. I don't know if she had seizures during the night or what, but she seemed to settle down over the next 24 hours. She seems to do this kind of stuff for a couple of weeks prior to her "storm" of big seizures. So, we have no way of knowing exactly when they will hit.

She can be such a happy girl that we often have little warning. She smiles and coos and we've even gotten a few laughs out of her over the past month. She is so beautiful. She can certainly brighten up the day. I just wish I knew what she was thinking or perceiving sometimes. Macayla seems to pick out certain sounds that make her smile. We were in a store yesterday and she smiled every time she heard the rattle of passing shopping carts. She often looks asleep at night and will not react when you walk in the room, but will smile when we push the button on her DVD player to stop the movie. There are so many things we wish we knew about her. But the one thing we know she is a gift from God.