We know she could go up and down for quite a while. We also are aware she may go home at any moment. Our prayer is to be with her and keep her as comfortable as possible. Our prayer is she will know we are near and that Christ is ever present. We hope to celebrate her birthday Saturday and in honor of her we will eat Zaxby's or Papa John's or one of her other favorite foods. I will try to keep the blog up to date, but can't make promises. Nor can I promise it will always make sense as my vocabulary, grammar and spelling reflect the sluggish condition of my mind right now. Thanks to all for the prayers and support. Our family is so blessed by you all.
Wednesday, May 19, 2010
Calm
Macayla had a more alert afternoon yesterday with a few smiles. She began having a bad breathing pattern as the day went on. It was not as spastic, but was definitely a Cheyne-Stokes breathing pattern (a few breaths followed by a period of apnea). She began to moan and sigh with it some. Ativan did not seem to break up the pattern. Later we gave some morphine and she stopped. She has been asleep for about 16 hours with a good, normal breathing pattern. We will administer Ativan around the clock and the morphine as her breathing patterns dictate.
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Jeff- I don't know how you do what ou do - the time is so close for Mac to go home. We think of her daily and pray for her and all of you at this special time. We love you very much.
ReplyDeleteYou all are in our thoughts and prayers. You are such special people and Macayla and Jacob are so blessed to have you as their parents. We know you feel the same way about them too. May God give you the peace that passes all understanding. Love to you all.
ReplyDeletePrayers are with you. God will guide you through this difficult time. There are so many people out here that love you guys. Love in Christ name, Shannon Howell
ReplyDeleteHI Y'all. Gene has kept us updated. I'm at a loss for words--if you can believe that! Just wanted you to know your ERBC family loves you and is sending up prayers for you all even now. I pray for your strength and that you will feel rested despite the long nights and lack of sleep. All extra measures of what you need will be provided to see this journey to the end. It never ceases to amaze me that He shows mightily through you still! Love & Hugs!
ReplyDeleteJeff and Jennifer, My prayers are with you! I am lifting you up to Jesus! He will comfort you at this difficult time in your life! We love your family!
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