Tuesday evening, I was talking with Macayla's pediatrician and told her that Macayla had not had a grand mal for a long time. She had some little seizures and some days that looked like she could have some big ones, but we were beginning to wonder if her brain was capable or connected enough to have a big seizure anymore. The next day, Macayla put all questions to rest. She had a grand mal while we were eating lunch, twenty minutes before we arrived at her neurologist's office for a check-up. It has been ten weeks since her last one and of course she had it when the neurologist could not observe it. She had another when she got home from the doctor's office. These were more like what we saw last year when she would stop breathing and throw up at the end. I'm sure the other patrons in the Haywood Mall food court were a bit freaked to see that unfold. She has had two more today and it may not be finished yet. At least with the last one she did not throw up anymore, especially considering she was in her freshly laundered wheelchair and she had just been bathed.
We have a respiratory therapist coming today to exchange out our faulty pulse oximeter and teach us a bit on suctioning. Suctioning Macayla has become more challenging lately. All of this is exhausting for her and I wish I could just make it all better. But we have to roll with it and maybe the seizures are back now that it is summer. She had her first grand mal seizures almost one year ago.
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