That's New

Macayla had a great Monday and seemed to be over her seizure(s) from Sunday morning. We put her on the pulse oximeter Sunday night but since she seemed back to herself on Monday, we did not put her on it Monday night. That was a mistake as it seems she had another big seizure in the night during her sleep. It had to have been between 11:30 p.m. and 5 a.m. She was post-ictal this morning as she would not wake up and she would not wet her diaper. She was sleeping on her side and obviously had something in her mouth. When I suctioned her, I pulled out formula which means she refluxed or vomited. She had to be cathed later in the morning and was lethargic the rest of the day. She is smiling now, but still tired. To our knowledge, these have been the first big seizures she has had in her sleep. It is also unusual to skip a day between big seizures. It will be a long night as we will put the pulse ox on her again. Unfortunately, it gives a lot of false alarms, but we need to know if she is really having these seizures or not.