Illusive Video

Macayla and Jacob did well over the last couple of days as Jennifer and I were away. They stayed with Jennifer's parents while we went to Charleston for a wedding and to celebrate our own 10 year anniversary! Charleston is where we met and that means it is a town rich in mushy, ooey-gooey memories for us. It was a great getaway and we are thrilled that the kids did so well. They always do for grandparents. Of course, Macayla had a grand mal a few hours after we got home, but it was shorter than the others and she kept her oxygen levels up better than usual. I didn't even have time to get my video camera out. 

We want to catch these on video so the neurologist can see it since she will never do one on an EEG or in front of him. Last night, I ran and got the camera and as soon as I walked into the room her seizure was over. So, I put the camera on a tripod in her room and pointed it at her in the bed. I expected that within 45 minutes to 2 hours, she would have another, but no! She went to sleep and didn't wake up until this morning. I think a camera is the best anticonvulsant we could have our hands on right now. She simply does not have seizures in front of a camera!! I plan to keep the camera on her all day today in the ready position. It would be surprising if she did not have another one today since the pattern has been to have multiple seizures over the course of a couple of days. Hopefully, we can catch the seizure on video if she has any.