Two Weeks and Counting...Oh, never mind!

Macayla went to therapy on Wednesday, two weeks since her last seizures. During therapy, Macayla turned pale/gray and the color left her lips, but she did not seem to be having a seizure. We were thankful that the two week mark came and went without a seizure. Then on Thursday, Macayla had one at school just before dismissal. She threw up and it lasted thirty seconds to a minute. When I got there she was asleep and stayed asleep for 6 hours. That was without Diastat! She then had two more last night and one more this morning. The neurologist saw a video of Macayla's last episodes and suggested that it might not be seizures but reflux. We are having a hard time understanding how reflux could cause all of the symptoms we see. It certainly could cause the breathing problems, vomiting, and rigidity. However, we want to learn more about it and see how it could also cause the lethargy afterwards or the "epileptic cry" she has had before some of the episodes. We also are wondering if it is both reflux and seizure activity together where one triggers or leads to the other. For now we have increased her reflux meds and experimenting with slower, more continuous feeding.